Today, 35,000 Americans are living under the paralysis and death sentence of ALS, “Lou Gehrig’s Disease.”    Military veterans and athletes are overrepresented in this group by more than a 2 to 1 margin over the rest of us.   For the 100+ years since the discovery of the ALS syndrome, it has been a uniformly fatal diagnosis, BUT ALSJusticeToday.Org is committed to fight for every chance at survival that exists.

While stem-cell and gene therapies are the greatest hope in finally conquering this horrific disease; the most promising EXISTING therapy is a drug called Iplex.  It is proven to be safe in humans, approved by the FDA for use on children with growth disorders, and has shown dramatically positive effects, including reversal of some symptoms, in the short time that ALS trial subjects have been allowed to use it.

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TRAGICALLY, THE FDA DOES NOT WANT US TO HAVE IT.  The FDA’s Center for Drug Evaluation and Research has overstepped its guidelines and has gone out of its way to block IPLEX when the drug would normally be available for off-label prescription to any ALS patient by their doctors.

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A LIGHT MUST BE CAST ON THIS SENSELESS OBSTRUCTION.   In the last 6 months the FDA has authored three different positions on IPLEX, each of them based on spurious logic and false statements.   They must be asked to substantiate their mystifying claims.   Without an investigation and reversal of their cruel positions, thousands may die unnecessarily.

HELP US RESTORE HOPE to our friends and loved ones by WRITING LETTERS to your elected officials or by DONATING to our advocacy fund.  Our message is simple and true, but we need your help in sharing it.

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BECAUSE NOBODY HAS BEEN ALLOWED TO CONTINUE THEIR TRIAL USE OF IPLEX FOR LONGER THAN 8 MONTHS, WE MAY BE SITTING ON A CURE AND NOT EVEN KNOW IT.   MANY INFLUENCIAL PEOPLE DON’T WANT YOU TO KNOW THIS BECAUSE, THOUGH IT COULD SAVE LIVES, IT WOULD BE DISRUPTIVE TO THEIRS.